6 Health Organizations Spreading Awareness And Improving Treatment
For the millions of people around the world afflicted by physical health conditions, day-to-day life can be a struggle. Thankfully, organizations such as the ones listed here are dedicated to helping. Through research and advocacy, they work to combat a range of diseases and disorders and improve healthcare for those most in need. This video was made with Ezvid Wikimaker.
6 Groups Raising Health Awareness & Fighting Diseases
| Organization | Mission |
|---|---|
| The Vascular Birthmark Institute of New York | Offer the most comprehensive care for children and adults affected by a vascular birthmark or tumors |
| ausEE Inc. | Improve the lives of those affected by eosinophilic gastrointestinal disorders by providing support and information and campaign and raise funds for further research in Australia |
| The Immune Deficiency Foundation | Improve the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency through fostering a community empowered by advocacy, education, and research |
| World Cancer Day | Raise worldwide awareness, improve education, and catalyze personal, collective, and government action to reimagine a world where millions of preventable cancer deaths are saved and access to life-saving cancer treatment and care is equal for all |
| The Alzheimer's Research and Prevention Foundation | Prevent Alzheimer's disease by funding research studies and providing educational outreach and memory screenings |
| debra of America | Improve the quality of life for all those living with Epidermolysis Bullosa in the United States |
What Are Eosinophilic Gastrointestinal Disorders?
Phases of Medical Research
- Basic medical research: Establishes an understanding of the issue and its effects on humans
- Preclinical research: Figures out how best to test an experimental treatment or cure
- Clinical research: Research is done on real people, under the supervision of physicians in a medical setting
10 Great Films About People With Disabilities
- Black (2005)
- Children of a Lesser God (1986)
- Rory O'Shea Was Here (2004)
- The Theory of Everything (2014)
- Scent of a Woman (1992)
- Adam (2009)
- Butterflies Are Free (1972)
- Everyday Heroes (2016)
- My Left Foot (1989)
- The Elephant Man (1980)
The Impact of the Immune Deficiency Foundation
In Depth
American medicine is a patchwork of inadequate systems of care that are frequently inaccessible to those who don't have enough money. Fortunately, many nonprofits and charities exist to support research on life-altering diseases like cancer and Alzheimer's. In no particular order, here are several organizations sharing information and researching remedies to various ailments.
At #1, we have the Vascular Birthmark Institute of New York. This organization offers comprehensive care for children and adults affected by birthmarks or tumors. It provides clinical evaluations, preview imaging studies, review photographs, and consultations with medical experts to make an accurate diagnosis of the lesion and to present an effective treatment plan.
The Vascular Birthmark Institute was founded by two doctors: Milton Waner and Alejandro Berenstein. Waner is an expert in the surgical management of hemangiomas and vascular malformations and has co-authored over 100 peer reviewed articles on the subject. Berenstein is an endovascular surgeon who heads the Hyman-Newman Institute for Neurology and Neurosurgery at the Mount Sinai Health System.
The Vascular Birthmark Institute was founded by two doctors: Milton Waner and Alejandro Berenstein.
The #2 entry is ausEE, an Australian charity providing support and information to anyone living with or caring for someone with an Eosinophilic Gastrointestinal Disorder. Every year, it promotes Feeding Tube Awareness Week to raise awareness for those living with feeding tubes and the day-to-day challenges they face.
The organization offers several ways people can support those living with Eosinophilic Gastrointestinal Disorder. One can talk to their kid's school and ask them to host a "Free Dress Day," or one can knit a comforting doll for a person who might be undergoing surgery. The institute also offers school, mealtime, and travel tips for those suffering from the ailment.
Up next, at #3, we have the Immune Deficiency Foundation, which works to improve the diagnosis, treatment, and quality of life for people affected by immunodeficiency. One way it supports patients is by advocating for national, state, and local healthcare issues that address access to care, community support, and research and development.
One way it supports patients is by advocating for national, state, and local healthcare issues that address access to care, community support, and research and development.
The organization's website allows individuals to locate physicians who specialize in these types of diseases. It hosts several Walks for Primary Immunodeficiency worldwide to raise money for educational resources and disease research. These active fundraisers have been held in Atlanta, Baltimore, Charleston, Boston, and Chicago. Those who don't wish to walk can donate to support someone who is.
For #4, we have World Cancer Day, which promotes 24 hours of education and action pertaining to this terrible disease. It is marked by hundreds of activities and events around the world, sharing the message that we all have a role to play in reducing the global impact of cancer. Every year, the day has a specific theme, such as "I Am and I Will."
The day is an initiative of the Union for International Cancer Control. It was started in 2000 at the World Summit Against Cancer for the New Millennium in Paris. The charter aims to promote research, prevent the disease, improve patient services, raise awareness, and mobilize the global community to progress towards a cure.
The day is an initiative of the Union for International Cancer Control.
The #5 entry is the Alzheimer's Research and Prevention Foundation, based in Tucson, Arizona. Its mission is to prevent the disease by funding research studies and providing educational outreach and memory screenings. It was founded by Dharma Singh Khalsa, M.D., in 1993. He was the first physician to advocate a lifestyle approach to the prevention and treatment of memory loss.
The foundation has developed 4 Pillars of Alzheimer's Prevention. This set of guidelines suggest that the following can help people stop memory loss: a healthy diet with supplements, stress management, mental and physical exercise, and spiritual fitness. The suggested brain aerobics include reading, writing, playing board games, and doing crossword puzzles.
The last entry, #6, is Debra, a charity dedicated to improving the quality of life for those with Epidermolysis Bullosa in the U.S. by providing free programs and services and funding research directed at symptom relief and a systemic cure. It is headquartered in New York City but has an international support network.
It is headquartered in New York City but has an international support network.
Epidermolysis Bullosa is a rare connective tissue disorder. One prominent symptom is extremely fragile skin that blisters and tears with any friction. Debra provides guides for caregivers to learn how to bandage wounds, blisters, and newborns suffering from the disease. It also has information to help one learn to recognize a skin infection, a common complication of Epidermolysis Bullosa.
